HiCy, rebooting Steph

HiCy Journey

Tuesday, March 30, 2010

March 30, 2010
Let me start by saying sorry to all the ladies in my bible study group...yes I put down the wrong URL for my website! But, I did put down google rebooting steph...so, I'm hoping you all find it! LOL I still have some brain actually working! YAY!
I have come to the realization that I am no longer alone in this! Yeah, I know I've had friends here, but not here in Arizona, see frequently kind of friends. It's weird to walk up to someone and have them ask if your okay, and of course I answer in my little lying way, "yeah, I'm fine...why do you ask?" Because of the way you said you were feeling yesterday. Now I'm wondering how the heck does she know how I was feeling yesterday? So, I ask. I know you were feeling dizzy and stuff...I read your blog.
Oh, yeah, I can't play the I'm fine card anymore! Now that kinda stinks...but not really. We're all suppose to let the ones that care about us most, know how we really feel, but honestly, we usually don't burden anyone with our own reality! Well, welcome to my world, because all the gory details of my glorious disease are pretty much here for the reading! Haha...I hide things pretty well, huh??
Well, the acting is over and everyone is welcome to help in anyway they can. Praying counts as helping, by the way!!
So, on that note, yeah, I feel like crud, pretty much. I am getting my daily MS stuff back...wow, that Tysabri was awesome now that I am starting to feel all the things it controlled! I have some new symptoms too! YAY!(sarcasm is a good thing). I knew about them though, from my last attack, so no biggy.
My stupid hands are shaking like crazy. I can't move them correctly...makes me mad! You'd laugh at me typing this...annoying! I can still drive, which is a huge thing! I'm not having an attack...just symptoms. I have this excruciating pain in my neck...and my chest is tight again...boohoo...actually, Advil liqui-gels are an awesome thing!
My thoughts are really scattered the last two days and I have to really take my time and think about what's being said. Another annoyance...such is life. I just have to keep reminding myself, I am on a journey to rid myself and hopefully others of this aweful disease. I am privileged enough to be one of the ground breakers for a treatment that may someday lead to a cure for MS! That is a pretty huge thing and I am so very grateful to have been offered this opportunity!
Thank you everyone for being a part of this! You too, are part of history by being my strength and companions through this!
I love you all!


  1. Hey....I am a fellow Eastside Explorer!! I will coordinate your meals when you are ready :) I wanted to tell you that RUSH is the B-E-S-T hospital!!!! I had my cancer treatment there and then 2 babies at that hospital as well! Look in some of the old medical research and you will find me! Okay, not my name, but I tried an experimental chemo therapy that worked, saved my life so I could be saved by the Son! Cindy Baldwin

  2. We love you Steph. We do care, and we do want to know when you feel like crud so we know when to jump in and help.